11/12/07

Bad Day..Back to Childrens We Go :(

So as the title says, we are back at Children's.  Yes, this is a HUGE step backwards.  Yesterday we were hanging out in our room, watching the Vikes and just relaxing.  The doctor ordered a couple of tests yesterday because she was still a little concerned as to why Avery isn't gaining more weight, and her heart rate is still pretty high.  They actually ran a thyroid test, to test for hyper-thyroidism and it came back showing that seems to be the problem.  They first told us we would be coming back here this morning, but then they called back and said they were going to send a LifeLink out to Waconia to get her right away.  They wanted her up here as soon as possible.  Talk about an emotional wreck..both mama and daddy.  We really had no idea what was going on, or why it was so serious at that point, but clearly it was.

We've learned a lot in the last 12 hours or so.  Turns out she has the opposite thyroid problem that I have.  Her thyroid is working way too fast.  This explains why she has been eating like crazy and not gaining weight, and also why she has been pretty fussy, and most importantly why her heart rate has been so high.  It was pretty scary finding out what was going on.  When we got back here last night, they put her on some pretty heavy heart meds right away to get that heart rate down as soon as possible.  Then they started treating her thyroid with a couple different things.  She will get her levels checked again today, and each day for awhile, to make sure the meds are working.  We got up here at about 11:00 last night.  They had a sleep room for us when we got here.  We went down to check on her at about 3:0o this morning and her heart rate had already dropped so that is great news.  Now we just wait and see I guess.  Poor little thing.  We thought we were so close to going home, and it just feels like we've gone backwards.  At the same time, we are beyond thankful for her doctor for going with her gut that something just wasn't right.  We know she is in the best hands here.  Kind of funny, she is even in the same spot in the NICU that we left last week.  We will post more when we learn more. 
Avery and Daddy on Sunday before we got the news we were heading back to Children's.

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